Sunday, December 16, 2007
things just aren't the same
I have been reading about Erik Quinn the Heart of a family for several months now, and one of the earliest blogs Nancy wrote was the shock she felt when she discovered that WS syndrome was part of her life. She writes that she felt like she packed to go to Rome, her passport and tickets said Rome, her guidebook and map was for Rome, but then she woke one morning and found herself in Amsterdam. When Simon was diagnosed it was similar - the party where all your friends are on the patio, you go inside to pick up a few more nibbles or a couple of cocktails, and when you walk back outside someone has shut the patio doors - your brain is already outside, ready to riposte that last remark you heard, ready to top the comment about the checkout, and instead you hit the glass, you find yourself on the floor surrounded by sausages thinking what happened. Your head for a couple of seconds is outside.
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